Thursday, June 12, 2014

My tumor made the news!

Well, my tumor made the local news in Jacksonville FL! I am glad I got to share my story. In the end, I hope that this experience can help someone else. Thanks again to my great doctor, Dr. William McGrath out of Fernandina Beach, FL! He was amazing! Also thanks to my friends and family for being such great supporters. I am one lucky girl!!

31lb Tumor Removed 

Thursday, May 1, 2014

Surgery Done!

Well, 3 weeks tomorrow is my surgery anniversary! The 30-35lb cyst/tumor (Mucinous Cystadenoma) was removed and the doctor said it was the biggest in his career. Spent 3 days in the hospital and it was rough, being it was my first time ever to have surgery. Of course it had to be major surgery. I will never forget it. It tested me in many ways. Sitting in ICU after surgery, I knew one thing to be true, I was alive!! I made it! It was a great feeling, but I still had a journey ahead.

Mucinous Cystadenoma is a rare type of ovarian tumor. It can be divided into 3 main categories; benign, malignant and borderline. My doctor explained today that the pathologist said I was borderline. Basically, my life was saved but there is still more work ahead. Can I have children? If everything else is working corectly, yes. But I have to get on it ASAP. Soon they want to send me to an OB Oncologist at Mayo to get more testing because it is possible for this exact same thing to happen to my right ovary. 

I am so thankful to Dr. E. McGrath out of Fernandina Beach, FL for performing this surgery and being so involved in my situation. He told me if he couldnt do it, he would make sure someone does. I was passed on by others, and had this tumor since 2011. I cant believe how big I got! I am still in shock on how much the tumor weighed! I am so grateful that everything happened the way it did, and I am recovering well from it all. 

Wednesday, April 9, 2014

Feeling Grateful

Well surgery time has come! I am excited, nervous, anxious and scared. I know its typical to feel this way, so I just take it one moment at a time. I am one lucky girl to have such an amazing family and great friends that have stood by me through this medical journey. My husband Gene has been great, and has been there for me through all of my pains to help me. When you marry someone, they need to be that person who can help you to the bathroom, wash you, and feed you. In the end, its that person you will want to be with. I am so fortunate and grateful. My parents are my rock. I am blessed to be my mother's child. My dad has been an amazing person with whom I wasn't always a great daughter to. But we have come a long ways and learned what it means to be father & daughter. My brother Eric and my niece Kaelyn mean the world to me and I would give my life for them any day. I am so grateful. Not many people have what I have.

When I wake up from surgery, I want to begin a new chapter in my life. I want to get healthy and focus on quality of life versus the party of life. I want to get real with everyone, and especially with myself. I want to live for me, not for everyone else. I want to give up on worrying about what people think of me or how they judge me. I want to read more, and take more trips. I want to write more, and take more photos. I want to make time to finish my education. Stop running from the past, and just accept what is. Life is too short to wait. I look forward to this new chapter.

- Jen

Monday, March 31, 2014

Waiting Game...

STILL waiting to get the cyst removed if you can believe it. Today was sort of a day that I am just down in the dumps over this waiting game. I've been waiting since January to have this cyst removed! I wonder how serious the doctors take this?? I dont understand how they are not being more persistent! I am very frustrated, and I understand I am not the only patient. But call me back when I call you!!! 

I am in pain everyday. My mom has been bringing my dinner to me and that makes me more depressed. I cant perform my job to the fullest because of my physical limitations. I can hardly fit into the last 2 pairs of pants I own that remotely even fit. I am HUGE! Some nights I toss all night long. I am just miserable. 

Well, I just had to vent. I dont feel better, but I know there is nothing I can do but be patient. I am trying my hardest. 

Sunday, January 19, 2014

The Cyst

I am sharing more than I would normally, but I am at my wits end. From my last entry I was hopeful someone would call me back and no one has. St. Vincent's hospital's on call Ob/Gyn said it was "out of their scope" of work to handle this cyst. So I was referred to another doctor. When I called them, they said they were not affiliated with St. Vincent's Hospital or their HOPE program. So off to Baptist Medical Center ER where I hoped to get another answer. Spent the entire day there, and halfway through, I almost just left. The doctor there basically told me I had to be in a "state of emergency" for them to admit me into the hospital to have the cyst removed. I decided to stay to get further testing, and an Ob/Gyn came to my room to inform me there are parts of my cyst that are solid. Had the cyst been completely liquid, she would have removed it. 

Solid parts of a cyst could be anything, but worst case scenario, it could be cancer. Cant do surgery on a cyst if there is cancer without going through the proper procedures. Lots of doctor mumbo jumbo, and they send me home to follow up with that same ob/gyn later in the week. I called her office to make an appointment and "they" say they will call me back. Never heard back. I called them back a few days later and I was told because I have no insurance, I am self-pay, and its going to cost so much money to even be consulted..... Hmmmm...thats fine, but could you have called me back and told me that??? What the heck?

I have decided to post some photos of what I look like at this point. I hate my body right now, and its hard to sleep, move around, get up and down, bend over and even get dressed. I am 35 years old, and dont even know if having children will even be a possibility, so depression has paid its toll of me as well. I know there is hope over the horizon with this affordable health care that I will be getting Feb. 1st. I just hope I do not have any issues from here on out. Keep me in your thoughts!

Saturday, January 11, 2014

Emergency Room Hopping

Well this week started and ended at an emergency room. I had such a bad cough last week that I pulled a muscle in my side bad enough that I just couldnt sleep. Ended up bouncing to a few other ER's this week to see if someone could help me with a cyst I have had for over 2 years. Kind of the reason for my pulled muscle in a way. Found out that my cyst at this point is 30cmX25X30. Huge. The last ER we were at, we ended up there for over 10 hours and they found some solid parts of the cyst that showed concern. So lots of tests later, they sent me home and have promised to get me back in to help me get this surgery. 

Sometimes we forget what is most important in life, and thats the great family and friends around you. It's the life you live, and the lessons you learn along the way. I want to document my journey in hopes other people can relate, or I can shed some insight. I love the thought of helping other people through my lessons. I can only pray and send out positive energy that this surgery will happen soon and I can go back to a normal life again.

I want everyone in my life to know how thankful I am for each and every one of you. Without each person, I wouldnt be where I am today. Everyone in your life has a purpose.